We've compiled some excellent resources about cystic fibrosis for both patients and caregivers. You can download each by clicking on the picture or the link.
CFF Winter Highlights
Important updates from the CF Foundation on treatments, resources and other news for patients, families and medical professionals.
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Living with CF
Find out more about Cystic Fibrosis, nutritional and health needs and how they change from birth to adulthood, germ control and insurance issues.
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An Introduction to CF for Patients and Families
Click here to watch video
An Introduction to CF for Patients and Families (Spanish)
Click here to watch video
Bone Health and CF
People with cystic fibrosis (CF) are living longer than ever. As people age, bones get weaker and break easier. Two common bone diseases are osteoporosis (ostea- o-pour-o-sis)*, or osteopenia (ostea- o-pea-knee-a). People with CF are prone to osteoporosis and osteopenia. Bone health is vital...
Click here to read more
Know Your Health Insurance Coverage
Having good health insurance is important but understanding or choosing your health insurance is not easy. This pamphlet gives you information and lists questions you can ask about your health insurance...
Click here to read more
Nutrition Changes Through Life
Good nutrition is crucial for people with cystic fibrosis (CF). For all ages, there appears to be a connection between good lung function and a higher body weight. A balanced, high-calorie diet with salt, fat, and protein gives the body what it needs to grow normally and live well. Normal gains in weight...
Click here to read more
Nutrition For Teens With CF
The teen years are both fun and
hard, especially for teens with
cystic fibrosis (CF). Teens grow
physically, emotionally, intellectually,
and socially, all at the same
time. Teens with CF can do almost
everything their peers do, like go to
school, go to college, date, and plan
careers. However, as a growing teen
with CF...
Click here to read more
Nutrition For Your Child With CF
Your child is no longer a toddler and is learning and growing in many areas, like eating. Four- to seven-year-olds are better at chewing, swallowing, using utensils, and sticking with the task of eating. Children this age with cystic fibrosis (CF) develop and act like children without CF, but...
Click here to read more
Nutrition For Your Infant With CF
Good nutrition is very important for infants with cystic fibrosis (CF). A balanced diet, which includes adequate calories and the right vitamin and mineral supplements, is key to good nutrition and health. Reaching and maintaining a normal body weight will help your baby be as healthy as possible. The CF dietitian or care provider will teach you how...
Click here to read more
Nutrition For Your Toddler With CF
A toddler with cystic fibrosis (CF) needs to eat nutritious meals and snacks just like any other toddler. The toddler with CF also needs enzymes, special vitamins, and extra calories to gain weight, grow, and...
Click here to read more
Stopping The Spread Of Germs
Living with cystic fibrosis (CF) or raising a child with CF can put heavy demands on your daily routine. Medicines and treatments take a lot of time, but will help you or your child stay healthy. There are some other simple things that people with CF can do to decrease the risk of catching germs (bacteria or viruses) that cause infections. This pamphlet lists ways that people with CF can stop the spread of germs...
Click here to read more
What You Should Know About Germs
Germs are everywhere. For people with cystic fibrosis (CF), some germs or pathogens can cause major respiratory or lung infections. This pamphlet explains how germs are spread. It also lists some of the germs a person with CF may get...
Click here to read more
Treatment Information
Get more information on standard treatments for CF with these informative resources.
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Airway Clearance Techniques
Airway clearance techniques (ACTs) are treatments that help people with cystic fibrosis (CF) stay
healthy and breathe easier. ACTs loosen thick, sticky lung mucus so it can be cleared by coughing or
huffing. Clearing the airways reduces lung infections...
Click here to read more
Pancreatic Enzyme Replacement
The FDA has required all pancreatic enzyme manufactures to undergo testing and approval for their formulations, and set April 28, 2010 as the deadline. So far, three brand pancreatic enzymes have met the new rigorous requirements set by the FDA and have been approved. These are Creon, Zenpep and Panceaze.
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Postural Drainage
Postural Drainage and Percussion (PD & P), also known as chest physical therapy, is a widely accepted technique to help people with cystic fibrosis (CF) breathe with less difficulty and stay healthy. PD & P uses gravity and percussion to loosen the thick, sticky mucus in the lungs so...
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Which Nebulizer For Which Drug?
Many of the drugs used to treat lung disease in cystic fibrosis (CF) are aerosols or mists that are inhaled so the drug goes right to where the problems exist. In CF these lung problems include thick mucus, muscle spasm, inflammation and infection. There are inhaled drugs that fight each of these problems, and sometimes many inhaled drugs are needed to keep the lungs healthy. Drugs can be made into mists or aerosols...
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CF and School
What does CF mean for a school-age child? Can they play sports? Will it interfere in the classroom? These documents will help parents, children and educators understand what the student with CF needs.
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School And CF
Learning opens doors to new worlds and helps prepare young people for a bright future. Many people with cystic fibrosis (CF) have become doctors, lawyers, teachers, homemakers and engineers, or have pursued careers in other fields. Learning is a vital part of life at all ages. Schools help people to live, learn and enjoy each day, whether to prepare for a career or just to enjoy the process. When people with CF attend school...
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School-Enzymes-Sports
The Cystic Fibrosis Foundation has prepared this fact sheet for teachers, caregivers, and parents to help them meet the nutrition needs of the school-aged child with cystic fibrosis (CF)...
Click here to read more
Patient Assistance
Many pharmaceutical companies provide financial assistance for patients without health insurance coverage. Download these forms to process your application.
Click here
An Introduction to CF for Patients and Families
Click here to watch video
An Introduction to CF for Patients and Families (Spanish)
Click here to watch video
Bone Health and CF
People with cystic fibrosis (CF) are living longer than ever. As people age, bones get weaker and break easier. Two common bone diseases are osteoporosis (ostea- o-pour-o-sis)*, or osteopenia (ostea- o-pea-knee-a). People with CF are prone to osteoporosis and osteopenia. Bone health is vital...
Click here to read more
Know Your Health Insurance Coverage
Having good health insurance is important but understanding or choosing your health insurance is not easy. This pamphlet gives you information and lists questions you can ask about your health insurance...
Click here to read more
Nutrition Changes Through Life
Good nutrition is crucial for people with cystic fibrosis (CF). For all ages, there appears to be a connection between good lung function and a higher body weight. A balanced, high-calorie diet with salt, fat, and protein gives the body what it needs to grow normally and live well. Normal gains in weight...
Click here to read more
Nutrition For Teens With CF
The teen years are both fun and
hard, especially for teens with
cystic fibrosis (CF). Teens grow
physically, emotionally, intellectually,
and socially, all at the same
time. Teens with CF can do almost
everything their peers do, like go to
school, go to college, date, and plan
careers. However, as a growing teen
with CF...
Click here to read more
Nutrition For Your Child With CF
Your child is no longer a toddler and is learning and growing in many areas, like eating. Four- to seven-year-olds are better at chewing, swallowing, using utensils, and sticking with the task of eating. Children this age with cystic fibrosis (CF) develop and act like children without CF, but...
Click here to read more
Nutrition For Your Infant With CF
Good nutrition is very important for infants with cystic fibrosis (CF). A balanced diet, which includes adequate calories and the right vitamin and mineral supplements, is key to good nutrition and health. Reaching and maintaining a normal body weight will help your baby be as healthy as possible. The CF dietitian or care provider will teach you how...
Click here to read more
Nutrition For Your Toddler With CF
A toddler with cystic fibrosis (CF) needs to eat nutritious meals and snacks just like any other toddler. The toddler with CF also needs enzymes, special vitamins, and extra calories to gain weight, grow, and...
Click here to read more
Stopping The Spread Of Germs
Living with cystic fibrosis (CF) or raising a child with CF can put heavy demands on your daily routine. Medicines and treatments take a lot of time, but will help you or your child stay healthy. There are some other simple things that people with CF can do to decrease the risk of catching germs (bacteria or viruses) that cause infections. This pamphlet lists ways that people with CF can stop the spread of germs...
Click here to read more
What You Should Know About Germs
Germs are everywhere. For people with cystic fibrosis (CF), some germs or pathogens can cause major respiratory or lung infections. This pamphlet explains how germs are spread. It also lists some of the germs a person with CF may get...
Click here to read more
Pre-Visit Forms
Have an appointment with us? Download and fill out these forms before you come to speed up your visit.
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Children's Health Network
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Many of the Cystic Fibrosis documents included have been provided by and are copyrighted by the Cystic Fibrosis Foundation. For more information, go to www.cff.org.
