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Cystic Fibrosis Foundation

CF Voice

All the foundation's patient assistance programs can be found online at

CF Patient Assistance Foundation (CFPAF)

Living With CF Webcasts

Become an advocate for CF, register to receive the CF Advocacy Newsletter at https://www.cff.org/Get-Involved/Advocate/ or contact the NY State Advocacy Chair, Melissa Shiffman, at cffnyadvocacy@gmail.com

To help you navigate the complex world of health insurance and healthcare coverage, the CFF Patient Assistance Resource Library (https://www.cff.org/Assistance-Services/Insurance/Your-Insurance-Plan/Find-Resources-CF-Foundation-Compass/) offers a range of useful information, including:
  • Sample letters of medical necessity and prior authorization;
  • How-to guides to navigating common insurance obstacles;
  • Templates for insurance appeals, exceptions and reconsiderations;
  • CF care guidelines;
  • Evidence-based medical journal articles; and
  • White papers for medical professionals.
CFfone is a network of young people around the world who have cystic fibrosis. Through CFfone you can communicate and share with others who understand what life with CF is all about. Learn more about CFfone here https://clinicaltrials.gov/ct2/show/NCT01183286

Information for Teachers

Useful nutrition links:

Health Insurance Coverage Information



Healthcare Reform

Go to www.nyhealth.gov to get the most recent Medicaid updates and information regarding the Medicaid Redesign Team (MRT) Proposal #11

Pharmacy and Medicines

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