North Shore-LIJ Health System
https://www.northwell.edu/

Cohen Children's Medical Center
http://www.northshorelij.com/ccmcny/home

Cystic Fibrosis Foundation
www.cff.org

CF Voice
https://www.cff.org/Get-Involved/Community/Community-Voice/

All the foundation's patient assistance programs can be found online at
https://www.cff.org/Assistance-Services/

CF Patient Assistance Foundation (CFPAF)
http://www.cfpaf.org/

Living With CF Webcasts
http://www.cff.org/LivingWithCF/Webcasts/

Become an advocate for CF, register to receive the CF Advocacy Newsletter at https://www.cff.org/Get-Involved/Advocate/ or contact the NY State Advocacy Chair, Melissa Shiffman, at cffnyadvocacy@gmail.com

To help you navigate the complex world of health insurance and healthcare coverage, the CFF Patient Assistance Resource Library (https://www.cff.org/Assistance-Services/Insurance/Your-Insurance-Plan/Find-Resources-CF-Foundation-Compass/) offers a range of useful information, including:

• Sample letters of medical necessity and prior authorization;
• How-to guides to navigating common insurance obstacles;
• Templates for insurance appeals, exceptions and reconsiderations;
• CF care guidelines;
• Evidence-based medical journal articles; and
• White papers for medical professionals.

CFfone is a network of young people around the world who have cystic fibrosis. Through CFfone you can communicate and share with others who understand what life with CF is all about. Learn more about CFfone here https://clinicaltrials.gov/ct2/show/NCT01183286

Scandishakes, Scandikal
http://www.scandishake.co.uk/

Ensure, Glucerna
http://www.abbottstore.com/?utm_source=msn&utm_medium=ppc&utm_term=Title&utm_content=Title&utm_campaign=RAIS%20General%20AS

Boost
http://www.nestlenutritionstore.com/Pages/Search.aspx?k=*&v1=%2bdisplayname&asc=1&PROMOCODE=PDSS10&utm_source=bing&utm_medium=cpc&utm_term=

Cystic Fibrosis Related Diabetes (CFRD)
http://www.cff.org/LivingWithCF/StayingHealthy/Diet/Diabetes/

Diet and Calories
http://www.cff.org/LivingWithCF/StayingHealthy/

American Dietetic Association Public Information
http://www.eatright.org/Public/

Healthcare.gov
www.healthcare.gov

Cobra
www.dol.gov/ebsa/cobra.html

Healthcare Reform
https://www.cms.gov/CCIIO/Resources/Fact-Sheets-and-FAQs/aca-new-patients-bill-of-rights.html

Go to www.nyhealth.gov to get the most recent Medicaid updates and information regarding the Medicaid Redesign Team (MRT) Proposal #11

CF Services Pharmacy
www.cfservicespharmacy.com

Novartis
www.novartis.com
www.tobipodhaler.com

Genentech
www.gene.com

Gilead
www.gilead.com

CREON
www.CREON.com

Zenpep
www.zenpep.com

Pancreaze
www.PANCREAZE.net